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The Caring for Carcinoid Foundation (CFCF) is the leading 501©(3) nonprofit dedicated to discovering a cure for carcinoid cancer.

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  • Public, Open Access
  • All Journey Phases; Carcinoid Cancer
  • Caring For Carcinoid Foundation
  • www.caringforcarcinoid.org

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I am currently being treated for Pancreatic Neuroendocrine Carcinoid which has metastasized to my liver.
Hi, I am getting Lanreotide injections once a month(since October 2017) and taking a daily medication called Afinitor(which was added to my treatment since the injections weren't effective on it's ...
1
  • Fri Mar 2, 2018 ·
I am currently being treated for Pancreatic Neuroendocrine Carcinoid which has metastasized to my liver.
Please excuse the errors in my post above. I was typing on my phone and it was difficult to proof read! -Shannon
3
  • Mon Jan 29, 2018 ·
Hi, I'm Driver20
Is there anyone out there who has been diagnosed with this type of small-cell lung cancer?? It is a type of cancer that is not in the lungs but starts in the stomach cavity, OUTSIDE of the stomach....
1
  • Sun Jun 14, 2015 ·
Hi, I'm JAMES H S.
Thanks, My wife made some ground this week with the insurance company. The Dr office was a big help as well. Now we think everything is all cleared up and insurance should start paying again.
3
  • Sun Feb 8, 2015 · Like1
Hi, I'm Sharon L.
I'm so sorry for your loss Wendy. Was this recently? You ask if it is related to Carcinoid Tumors? Was he diagnosed with Carcinoid? It is definitely related and a major risk factor with having ...
2
  • Wed Dec 17, 2014 ·
I'm Jo K R., and I'm a survivor of Carcinoid Cancer
I was diagnosed after 5 years of anemia, inability to eat, lack of energy, and general "blah." I finally started keeping a journal, researched, diagnosed myself, and had confirmation in March of a ...
1
  • Sun Aug 3, 2014 ·
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